DR RADICA MAHASE
For the past eight years I have had the opportunity to interact with many parents and caregivers who are also raising children with special needs.
For me, there is a sense of comfort in knowing that there are other parents/caregivers out there who understand that the autism journey might be a different experience; who might be able to offer words of comfort; who might just show that they understand the challenges. Sometimes just meeting someone who has already dealt with a challenge that we are not dealing with can give a sense of comfort.
As my nephew turned 18 years, and as he entered adulthood, I thought back to the years when he was diagnosed and the road that we have travelled from then until now. I won’t lie, the challenges have been numerous – and they have been the same challenges that most parents are faced with – accessing schools, finding and affording therapy, finding inclusive social settings and society’s negative attitudes and behaviour. I don’t think the challenges will ever go away completely but I do know that a lot of it has been dependent on our attitude and how we approach them. I also know that as the years went by, we have learnt to accept them and deal with them better.
To those parents and caregivers who are now receiving a diagnosis for their children or who are now trying to get their children diagnosed – this is probably the most overwhelming stage. The beginning is the scariest because that is when you really don’t know where to turn for help. That is when you are not sure of what you have to do, what your child needs from you, what you can do to help your child.
This is the time when you really need to reach out to your support system, or find a support system. Find other parents or parents who have special-needs children, NGOs, parents’ network – anyone who can offer some words of comfort. They may not necessarily be able to give you the help you need but just knowing that someone is there to listen and maybe offer advice, can go a long way in helping a parent to maintain a sense of calm and to feel a little bit in control of the situation. Also, remember, you won’t have all the answers, you will feel lost and helpless but a diagnosis is not the end of the world. It is not the end of your child’s life. That beautiful baby that you so happily welcomed into the world, is still your beautiful child.
[caption id="attachment_964308" align="alignnone" width="629"] Empower yourself so you can support your special-needs child - Courtesy Radica Mahase[/caption]
Believe in your child, even when society says that your child is not "normal" enough – stop expecting your child to "become normal". Too many parents wait for the years to go by with the hope that their child will start to speak, read or write, and so on. They wait for the child to "grow up so the autism can go away" or for their child "to get better." No matter how high functioning or what level autism your child is diagnosed at, your child will continue to have challenges and will need your help to nav
